Newly Diagnosed

The Wolverine Foundation partners closely with Dr. Wendy Chung’s research team at Boston Children’s Hospital to support communication and collaboration among MAPK8IP3 patients through the MAPK8IP3 Natural History Study.  A natural history study is a medical study that observes how a disease or condition progresses over time in a patient population to better understand the disease process and its impact on patients, ultimately aiding in developing better treatments.The data collected through the form below contributes to the development of the MAPK8IP3 Natural History Study, led by Dr. Chung’s lab.  By filling out this form you agree  (1) that you have permission to share any data submitted about MAPK8IP3 family members through this form, and (2) you voluntarily share the information submitted on this form with The Wolverine Foundation and/or our trusted partners, such as the Chung Laboratory at the Boston Children’s Hospital, for the purpose of advancing MAPK8IP3 research and efforts to discover treatment. Please reach out to alexa.geltzeiler@childrens.harvard.edu with questions.

View Study